Sjogren-Larsson Syndrome (SLS) Registry

A new database to accelerate research and cures for patients with this rare disease. … more

Participants wanted for PhD research on Health Apps

Seeking participants in research looking at how people use health apps, and their good, bad and average experiences. Share your... … more

Australian Intersex Survey

This study aims to address the lack of national data on social experiences in Australia. … more

Release of a WA Rare Diseases Strategic Framework 2015-18

The first strategy in Australia to specifically address the needs of people living with rare diseases … more

Have Your Say: Service Provision For Individuals With Muscular Dystrophy

MDWA would like to also hear from all people involved within the muscular dystrophy community. … more