NEW Consensus Clinical Management Guidelines for Friedreich Ataxia

Now Available on the FARA Website. The guidelines are designed to cover nearly all symptoms and issues that can be relevant to Friedreich... … more

Report: Funding Rare Disease Therapies in Australia

Australiaâs system for funding new therapies that treat rare diseases is in need of reform. … more

Australia aims for personalised medicine

Australia are seeking funding to establish a major clinical genetics research programme. … more

New Report: analysis of the personalized medicine and companion diagnostic market

A Strategic Analysis of Industry Trends, Technologies, Participants, and Environmentâ is a cutting-edge comprehensive report on the... … more

Genetic test unlocks cause of Brisbane boy's rare disease

Queensland researchers have led an international effort to uncover the gene behind a young Brisbane boyâs rare developmental condition... … more