As peak body, the Genetic and Rare Disease Network (GaRDN) advocates to influence outcomes in public policy & resource allocation within Government as well as the policies & practices of service agencies to ensure optimal results for people living with a genetic and/or rare condition.
Our systemic advocacy work includes media, participation in committees, submissions to government policy review processes and direct representation to politicians and other key decision-makers.
Individual advocacy can directly assist parents/families to resolve issues of specific relevance to their family. For more information on individual advocacy download: Resource Guide for Families (PDF)
For further information about advocacy support please do not hesitate to contact us on 9485 8999.
Advocacy in Genetics
Genetic Alliance Advocacy in Genetics Newsletter
Genetic Alliance’s How-To Guide
The guide is not specific to any genetic condition
Available: Attending School with a Genetic Condition: A Guide for Parents (PDF)