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Genetic and Rare Disease Network

GaRDN works to empower individuals and their families to reach positive health outcomes. We inform health professionals and the wider community on the perspectives and experiences of those affected by genetic and rare diseases. We connect key stakeholders and service providers with people affected by genetic and rare diseases. 

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Genetic test unlocks cause of Brisbane boy's rare disease

Queensland researchers have led an international effort to uncover the gene behind a young Brisbane boy’s rare developmental condition Temple-Baraitser syndrome (TBS), in a discovery his family hopes will pave the way for future treatments. read more …

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