Genetic and Rare Disease Network
GaRDN works to empower individuals and their families to reach positive health outcomes. We inform health professionals and the wider community on the perspectives and experiences of those affected by genetic and rare diseases. We connect key stakeholders and service providers with people affected by genetic and rare diseases.
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Human Genetics Society of Australasia have added two new resources for people affected by Phenylketonuria (PKU). read more …
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