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Genetic and Rare Disease Network

GaRDN works to empower individuals and their families to reach positive health outcomes. We inform health professionals and the wider community on the perspectives and experiences of those affected by genetic and rare diseases. We connect key stakeholders and service providers with people affected by genetic and rare diseases. 

Sign up to our Mailing List below to recieve our free newsletter, previous issues available here. Latest Newsletter: Gene Advocate Issue 77 2014

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Take part in the Australian Rare Diseases Survey of Adults

The purpose of this research study is to explore the healthcare experiences of adults living with a rare disease in Australia. This includes your experiences of: diagnosis, access to information, support and treatment; use of health services; patient registries, clinical trials and research. read more …

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